Sam Berns, who suffered from the premature ageing disease called progeria, has passed away in Boston, US, early this month. Sam was diagnosed with progeria at age two. He was lucky that his parents, Dr. Leslie Gordon and Dr. Scott Berns, tried very hard not to lose their son by age 13, the average age of death of a child with this disease. They started research foundation which aims to find drugs for progeria. Their work resulted in a drug called lonafarnib. Although it can’t totally heal the disease yet, it is appeared to ameliorate some effects of it.
Sam might not live for so long, he passed away in his 17, but I think he left us many lessons worth learning. I love his courage and confidence. I love how he focused on what he could do instead of regret of what he was not able to do. He played percussion, he hung out with friends, etc. He reminded us to feel grateful of what we have.
Here are Sam’s philosophy for a life:
1. Be OK with you ultimately can’t do, because there is so much you CAN do.
2. Surround yourself with people you want to be around.
3. Keep moving forward
4. Never miss a party if you can help it. ;D